Another visit....June 27, 2008

Another visit....and yet more tests Well, we had our second visit with the specialist today. It was not enlightening or hopeful or anything. I am even more confused as to what to do than ever. Brock's labs were back and we discussed them. His platelets look better, but now his white blood cells have dropped to below normal. We are going to have an MRI done (I think next week). They are checking for any possible brain tumors or scars from the seizures. This is not even a possibility I had thought of before so that frightens me. He has become quite clumsy and very fatigued lately which is why they want to do the MRI. These are always a huge ordeal with Brock. Last time the doctor messed up and overdosed him with sedative during the MRI. The time before that he had a reaction to the sedative they used. The doctor still does not want to rule out bone marrow cancer or another type of cancer at this point. I just want answers.... As for Brock, he was not a happy camper today. He has gotten so used to people poking him and messing with him that he was very noncompliant today. I don't blame him, but it is very aggravating to have your child act out. He cried and screamed even though the doctor was not doing anything. He refused to step on the scale too. I feel so bad for him! We are stressed beyond belief. When do you say enough is enough? What happens if we never get an answer? If we stop testing and something happens then we will feel horrible. If we keep testing and never find anything, then did we just submit our little one to meaningless torture? When does it end? ~S